Family Resources

National Organization of Disorders of the Corpus Callosum

A nonprofit organization committed to raising awareness about disorders of the corpus callosum through research, education, advocacy and networking. The NODCC hosts an annual conference which families are invited to attend.


Aicardi Syndrome Foundation (ASF)

The Aicardi Syndrome Foundation, Inc. is a not-for-profit organization founded in 1991 and aims to provide information, resources and a support network for individuals with Aicardi Syndrome and their families.




 A not-for-profit organization based in the UK that is led by and offers support for families and caregivers of children with ACC and Aicardi Syndrome.